Thursday, December 28, 2006

We all had a great Christmas this year. The girl's were absolutely spoiled. On Christmas eve we had everyone over to our house for dinner and gift exchange. Grandma & Grandpa Schiller were here from Florida. Baka & Deda and Auntie Nancy, Uncle Roberto, and Nicholas. This place looked like a toy store when the kid's were finished opening their gifts.
Santa must have found his way because Christmas morning there were even more gifts to open. I actually had to put some of the toys they got away. Once they start to get a little bored of what is out for them then I'll bring them out.
Christmas night we headed over to Baka & Deda's house to visit.We had a nice quiet night there. Auntie Nancy, Uncle Roberto, and Nicholas came over later to visit.
We hope everyone's Christmas was just as great as our was.
Christmas Eve

Christmas Morning

One little santa

Two little santa's
Christmas night

Tuesday, December 19, 2006

Today the girl's had their 18 month check-up with their Pediatrician. Olivia weighed in at 19 lbs & Avery at 21lbs. This now puts Olivia in the 25th percentile group for children her age, and Avery jumped up to the 5oth percentile.
The doctor didn't have any concerns nor does mom or dad. I was so happy when our appointment was over. She said she didn't need to see us again until the girl's were two year's of age. We do have to go back though next month for their second flu shot. Needles.... I think I hate them more than they do.

Sunday, December 17, 2006


The girl's love to listen to music. Any time a song plays on one of their toy's, or even if we sing a song to them they instantly will start to dance. While I was changing Olivia, Brian had Avery in the other room listening to his music collection from the computer. You can't tell from the picture's but she's bopping away to the music.

Brian is also a musician. His band mainly plays weddings. So I'm wondering if little miss Avery has picked up the musical talent from her dad.

Friday, December 15, 2006

I came across this poem yesterday while surfing other preemie sites. While reading it, I sat in front of my computer and cried. This poem could not be more true of how life is for the parents of a preemie baby and for the child themselves. All the other moms out there of preemies can relate to this. This is our lives on a day to day basis. So much uncertainty.
I remember during our 3 months in NICU many nurses telling me how one day I will forget about all we were going through. My memories are still very strong. I actually don't want to forget. It only makes me appreciate every tiny breath the girl's take that much more.
The Preemie Experience
by Sandra D Moore
The preemie experience is the shattering of all your dreams For a normal, healthy delivery,Of the ability to carry home a beautiful squirming bundle After a short stay in the hospital.

It is lying there in your hospital room listening to The happy sounds of whole families joined Together by the birth of a grandchild, cousin, niece,Or nephew, and knowing that your Child is miles away and may not survive long enough For you to see or simply touch.

It is that first glimpse of a skinny, scrawny, not much bigger Than a Barbie doll child And feeling, fear, awe, and joy for such a fragile soul.

It is sitting by your baby’s “bedside” day after day,Week after week, month after month,Alternating between the emotional high of “Look, her eyes are open,” or “She’s crying!”And the lows of “I’m sorry, Mrs. Moore. Something has Shown up in Lauren’s ultrasound,”Or even “There is nothing we can do…”

It is hearing the alarms go off for the twentieth time in less Than fifteen minutes because your Child’s heart rate keeps hitting zero.

It is watching children dying around you, wondering if Your child will be next.It is hearing your child’s cry of distress as the nurses Insert yet another IV and do another Round of daily blood tests.It is meeting other parents of children who are doing far better And wondering, “Why me?”And meeting parents of children who have just died,And praising God for His mercy To your child and feeling guilty because your child is alive And someone else is grieving for theirs.It is days of nightmarish testing and coping with less Than positive results to the tests.It is days of joy at seeing the first eyelash appear,The child gain a whole ounce in one day,And two bright shiny eyes look at you and into your soul,And knowing that your child now recognizes you as Mama or Dada;Or perhaps looks at you and does not see you at all…

It is that final hurdle before coming home!It is the sorrow of waiting for the monitor company Representative to show you what to do If the alarm sounds when your child is choking,Gasping for breath, or simply dying.It is the joy of just being away from all those nurses And tubes and wires and beeps, and Walking into the nursery you hastily prepared because, after all,The child wasn’t due for another three months!

It is thinking the nightmare is over…only to realize it still Continues in the form of Such acronyms as PVL, RSV, BPD, CP and numerous others.

It is the final realization that those developmental delays Have to be dealt with,That reflux is a normal and unfortunate occurrence in most preemies,That the constant fight to gain weight is in direct proportion To a preemie’s ability to do so.

It is watching a child struggle to pick up his or her head, sit,Crawl, or walk.It is witnessing only silence when the child should be babbling,Because the child cannot hear.

It is the mental images of a child running and playing And communicating with others in a perfectly normal manner that are marred when you face years of therapy In order to simply get the child to eat by himself or herself,To talk or walk and then run.

The preemie experience is a journey…A journey through your soul in order to find the faith and strength to cope,A journey of the mind when you face the emotional weariness,A journey of the heart…to accept that, no matter what,This child is yours, And you will love this child no matter what.

Monday, December 11, 2006

We have had such a busy week. On Wednesday Grandma & Grandpa Schiller came from Florida for a short visit. The girl's enjoyed spending time with them. We got in some Christmas shopping, and an afternoon at the library. They were only here until Saturday, but we'll see them again soon in a couple of weeks for Christmas. We also had a visit from the girl's cousin's Robbie, Krisalyn and Auntie Krista. It's so nice to see them playing together. The love playing with other kid's.
I can't believe we didn't get any picture's with Grandma. We'll have to just take more at Christmas.
Today we had an appointment with the Audiologist. Both girl's had their hearing tested and I am happy to say they both passed. We had to test Olivia twice because we gave her a bottle so she would sit still but it just relaxed her to the point where she just would not pay attention to any sounds. Once she finished her bottle and was re-tested, she passed. We'll go back in another three months when the girl's are 18 months corrected age for another test. I knew they would pass because the only time the don't hear me talking is when they are into something they shouldn't be. They just ignore me. Kids!

Saturday afternoon Brian's company had their annual children's Christmas party. Last year we weren't able to go because the girl's were just too small. The two of them had such a great time.They were showing off their new walking skills to everyone at the party. We were so surprised at Olivia, she would not sit still for a moment, and she only started walking on Friday. She also surprised us when she sat with Santa to get her present. She didn't cry. But she did refuse to look at him as everyone can see from the picture. I guess she remembered her last encounter with the white bearded man.

Friday, December 01, 2006

The other night I turned my head for a second from the girl's. When I turned around the two of them were pulling everything out of my kitchen drawers. They haven't figured out how to open the cupboards yet but these two are so smart that I'm sure I'll turn away again soon and all my pots & pans will be on the floor.