Thursday, September 27, 2007
Sunday, September 23, 2007
On Friday the girl's and I met up with Angi and Elizabeth at Frootogo Orchards. This place had everything! A great play area, a huge sandbox, some farm animals, and of course lots and lots of fruit to pick.
All the girl's did really great at picking lots of Apples, and even sampled a few along the way.
After we had finished our apple picking we purchased our apples and a few little pies, and headed off to lunch. By this time all three girl's were really exhausted. Olivia & Avery started to get VERY crabby, while Elizabeth had to fight to keep her eyes open at the table. It was really very cute.
Playing with the toys
Thursday, September 20, 2007
The other day I came across a blog about two former preemie girl's and a little boy born at 23 weeks just two weeks ago. This mother described her daughter's as both having CP and that her 23 week old son was in hospital fighting for his life. This woman's story broke my heart and also brought back many unpleasant memories of my own children's NICU stay. I had been so intrigued by this woman's strength to be raising two special needs children and having another preemie fight for life, that I added a link to her blog on mine.
This morning I read a comment left on my blog by another mother (claiming to be a former preemie mom) and when I went over to her blog, her story sounded very similar to the one I had just added a few days ago. Only her story consisted of a set of twin girl's, a one year old son, and a two week old daughter fighting for her life in the NICU. She discusses how her twin girl's and son all have GJ feeding tubes, how her son will be blind by the age of three, and how her most recent preemie in NICU is fighting off an infection, is vented, had a chest tube placed, as well as a PIC line.
Seeing as these stories sounded so similar and their blogs are very new, I decided to do some investigating myself. I was told that this woman is a FAKE and she has recently joined a support group for former preemie moms who have children with CP. I am absolutely outraged that someone would do this! Having a preemie is not a joke. Having a child with a disability, is not a joke. It is an experience for us parents of former preemies that is horrifying to say the least. Reading her description of her child fighting for their life brings back a lot of unpleasant memories for myself and I'm sure a lot of other mother's.
People like this should be ashamed of themselves! Of all the things they could be doing with obviously a lot of spare time, they choose to "mock" as I see it, an experience that none of us ask for. But one that we all still re-live on a daily basis.
I have removed the link to this blog, and hope I never come across this again!!
Saturday, September 15, 2007
Not being able to bring home the girl's together was so hard on us, but once we had both girl's home we realized we had more of a challenge than we ever expected. Not because we were dealing with two babies on our own, feedings that would take four hours to complete sometimes, and reflux but, because Olivia in reality was not ready to be released from the hospital when she was, which was partly my fault. I was just simply sick and tired of hospital life. I wanted both of my kids home and I wanted to start to live as a family. Meaning, I didn't want to deal with doctor's everyday, or nurses watching over me as I shared a quiet moment with my daughter, endless beeping sounds of monitors going off, and sounds of mother's crying because they had just delivered their baby prematurely.
On this day two year's ago I begged the doctor's to let me take Olivia home. The reason she had not been released with Avery was because she was not waking on her own to feed. But at the same time, the NICU nurses weren't giving her a chance to wake up hungry because every three hours they came in and pushed her feed into her stomach through her NG tube. How was she ever to feel hungry on her own? So I promised the doctor's that I would wake her every two hours to feed her. They agreed, and within a few hours we had our discharge papers in hand along with our other baby.
Once she came home I did as I promised, I woke her every two hours for a feed, but all she wanted to do was sleep. Sometimes her feeds would only consist of half an ounce. Which even that was a struggle. Then when you add reflux into the equation it only became harder. That half an ounce that I would have struggled with to get into her, would sometimes come right back out of her. So we would have to start all over again. Not much fun when it's the middle of the night and mommy hasn't had much sleep as it is.
We reflect back on those times a lot and remember wondering if that time would ever change. Well it has changed in some ways, the reflux is gone, but she still continues to be a picky little eater. One thing that hasn't changed is the fact that I would do it all again for her if I had to.
On September 15th 2005, we were finally a REAL family.
Friday, August 31, 2007
Friday, August 24, 2007
Sunday, August 19, 2007
Tuesday, August 14, 2007
We had our two year check up today with our new Pediatrician. We have had A LOT of doctor's appointments over the past two years but, this by far was the best. Our previous pediatrician would always brush off any concerns I ever had with the girl's which was extremely frustrating, or would dance around a question I would have which would then leave me completely confused and always asking myself why I bother taking the girl's to her.
Well different outcome today. Our new doc listened to everything I had to say, answered every question I had. Gave me some great suggestions on where to go from here now that the girl's are two years of age, and most importantly made me feel confident and comfortable with him looking after them medically. VERY IMPORTANT.
So for the exciting news.... Avery weighed in at 27.5lbs 34.5 inches in length. Olivia weighed in at 24.5lbs and also 34.5 inches in length. WOW my girl's are finally in the 50th percentile for height but are still in the 25th percentile for weight. I actually don't pay much attention anymore to the charts, I stopped worrying a long time ago about that. I am just so happy that they are both gaining weight and are healthy.
Now for more exciting news, when he was going over what the "typical" two year old (term) should be doing, one of the questions he asked me was are they saying at least two words? I told him they are talking to me in sentences now. He kind of looked at me a little strange until Olivia looked up at me and said "Look mama, a lady bug" he was in complete shock. Of course I just started laughing because of the expression on his face. He was really impressed with all the things they were doing and told me he had no concerns about them developmentally. YIPPEE!!!
Once again girl's we are so very proud of you!!!
Tuesday, August 07, 2007
We first have to wish our nephew Nicholas a BIG Happy 2nd Birthday. He turned two yesterday. His birthday celebration had to be put off until next weekend since he has a little bit of a cold. See you next weekend buddy!!
We also have to wish Cole a BIG Happy 2nd Birthday!!!! He also turned two yesterday.
Saturday we headed over to Meredith (Mimi) & Courtney's (Coco) house for some play time and a barbecue. All the girl's had a great time playing together as well as Mimi & Coco's older sister Kaitlyn.
Mimi & Coco sat very patiently with Olivia & Avery while they had their bottles. They even helped them out a little by holding the bottle for them.
Enjoying their Blueberry/Lemon popsicles
Friday, July 27, 2007
Monday, July 23, 2007
Well once again we headed out this past weekend for another family adventure. I figured since the girl's are learning so much about different land animals, why not expose them to some marine mammals as well. It was a great day, we saw some incredible things and the girl's were really in awe with seeing these creatures so up close.
We managed to get a show in of the Dolphins, Walruses, and Sea Lions. They are so incredibly amazing to watch. While Brian & I were on our honeymoon I had the opportunity to go swimming with some dolphins. Which was an experience I will never forget and hope the girl's will get to experience one day themselves.
Avery & Olivia sat through the entire show perfectly still. They would join the crowd in some clapping and cheering here and there. It was really very cute to watch them taking it all in.
Marineland does a great job of letting people get involved with the animals. Along with petting and feeding the Deer, they also sell food to feed the Bears as well.
Daddy & Avery checking out some fish
